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Hi everyone. I thought I’d share with you a bit more about my story. I thought this forum would be the best place to share this story.
I don’t think I’ve shared this with anyone on CDH yet. I’m almost completely blind.
I was born with a genetic syndrome called Lawrence-Moon. This syndrome has four major symptoms, and each symptom can vary in severity from person to person.
These four symptoms are some form of vision loss, an obesity factor, being born with extra fingers or toes, and some form of cognitive or communication deficiency.
I was born with Tunnel Vision, which means a loss of either central or side vision. On top of that, I developed cataracts in 2011 which specialists didn’t want to remove. As a result, all I can see today is tell the difference between light and darkness, some very basic colours, and that’s it. I can’t even see the computer I’m writing this post on let alone the read what I’m writing.
I was also born with an extra toe on the small side of each foot, an obesity factor which has lead to Type 2 diabetes, and I struggle when communicating in small groups or conversation with another person one to one.
So how can I write on CDH when I can’t see?
All computers today have as part of their accessibility settings what is called a screen reader. The screen reader reads aloud and tells me what I’m typing or what screen element the mouse pointer is pointing to or what the screen reader cursor is pointing to. I use Apple computers, so Apple’s screen reader is called, “VoiceOver”.
As an example, I can use VoiceOver to read aloud to me all the latest posts from the forums, let me know when somebody’s accepted my friend request, or tell me what I’m typing as I create a new post, like this one. It’s very cool stuff!
Do I have any challenges being a blind cross dresser? Yes. The main challenge is colour. If I had a number of t-shirts in front of me, I wouldn’t know which one is which. I use an app on my iPhone which uses the rear camera pointed at a shirt to tell me what colour it is. I have to put things in a precise spot in my wardrobe and put them in that spot every time so I know I’m putting the right thing on. I have been given a good memory, which I call on often to remember where I have put specific clothes. I also rely on feeling the clothes’ texture to tell me which is which.
I can remember what all the basic colours look like as my vision was really good when I was young. I used to watch TV, play computer games, and read print books.
I use VoiceOver on my iPhone to navigate the ASOS app or the Ebay app to do my on line shopping. Both apps are easy to use and very descriptive of the items, so it’s very easy to visualise what I’m buying.
So, that’s the Stephanie Roberts story. I hope you’ve learned a lot more about me, and if you’ve got any questions, please either reply to this post, or send me a private message.
Love, Stephanie ❇️❤️
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